heart – Midwest Transplant Network

Tag Archive for: heart

Scot Pollard’s Transplant Journey: A Big Heart for a Big Legend

April 11, 2024/in Blog, News/by Midwest Transplant Network

A tall man in a hospital room, wearing a hospital gown and standing with a walker.

Scot Pollard stands with a walker in a hospital room during his care as he underwent a heart transplant. Photo provided by the Pollard family.

At 6’11”, Scot Pollard’s size has often been credited as a gift, propelling him into an 11-year NBA career following his legendary time with the Kansas Jayhawks men’s basketball team, during which he helped Kansas reach the NCAA Sweet 16 four seasons in a row.

In 2021, Pollard’s heart health began to rapidly decline due to a hereditary condition exacerbated by a contracted virus. It eventually became apparent that most medical solutions would not be enough. He needed a new heart, and more than that, he needed a really big one.

The respective body size of an organ donor and a registered transplant candidate are factors in determining whether a successful transplant is possible – especially for a heart. In the case of someone as large as Pollard, the odds of finding a match are lower.

“It’s not like being tall is a curse. It’s not. It’s still a blessing. But, I have known my entire life that there’s a good chance I wasn’t going to get old,” said Pollard in an interview with the Associated Press. “And so it gives you a different perspective on how you live your life and how you treat people and all that kind of stuff.”

Pollard and his wife, Dawn, revealed his condition on social media in January. They went on to post updates and participate in news interviews to share his progress, which in turn raised national awareness for the complexities surrounding organ transplantation and the importance of organ donation.

He underwent a successful heart transplant surgery on Feb. 16, after which he “immediately felt better.” Just 13 days later, he strutted out of the hospital to a chorus of applause.

Through this journey, Pollard has learned about the lifesaving gift of organ donation, and even hopes to one day connect with the family of his donor hero. “I would love to show them this heart isn’t going to waste.” Every donor hero can save up to eight lives, and Pollard hopes that by educating his friends, neighbors and fans, he can contribute to this life-saving work. “I’m going to annoy people with becoming a donor. That’s going to be a project for the rest of my life,” he said.

In honor of National Donate Life Month, Midwest Transplant Network is proud to recognize Scot Pollard as a Green Ribbon Champion for his openness about his transplant journey and advocacy for organ donation. Green Ribbon Champions are individuals who are passionate about increasing the number of registered organ donors in their communities, understanding that a simple “yes” can help give hope and share life to the thousands in need of life-saving organ transplants.

Midwest Transplant Network invites you to consider joining your state’s organ donor registry and encourage others to do the same. Learn more about the types of donation, including the option to be a living donor, and the incredibly positive emotional experiences of organ donor families and transplant recipients.

Join the organ, eye and tissue donor registry in Kansas and Missouri at ShareLifeMidwest.com or join the national donor registry at RegisterMe.org.

MTN Spotlight – Barb Sheble, Ambassador

August 30, 2023/in Blog/by Midwest Transplant Network

August is National Multiethnic Donor Awareness Month, a collaborative initiative to save and improve the quality of life of diverse communities by creating a positive culture for organ, eye and tissue donation.

Midwest Transplant Network will recognize and support National Multiethnic Donor Awareness Month with a series of original content featuring community partners, staff and volunteer Ambassadors who represent diversity and the mission to give hope and share life. We hope you enjoy the perspectives of our friends!

MTN Spotlight…Barb Sheble

In college, Barb Sheble passed out during track practice. A few months later, she got sick and passed out again. She was diagnosed with a congenital heart condition. That was in 1991.

In the mid- ‘90s, doctors said a transplant would be in her future.

“In the ’90s, you didn’t hear as much about organ donation,” said Sheble. “My only knowledge about organ donation was that a friend’s brother signed up to be a donor on his license. He died in a car accident and his organs were donated.”

Sheble said she “lived with the condition for 18 years” before being placed on the transplant waitlist in January 2009. She received a heart the same year.

Sheble, whose heritage is Citizen Potawatomi Nation, is an MTN Ambassador who’s volunteered since 2013. As a kid, she wanted to be a marine biologist; as an adult, she’s a medical lab scientist. The favorite songs on her playlist are “too many to count” because music is her peace and solace; she loves to rest and relax in the mountains, and when it comes to roller coasters or Ferris wheels, it’s “Roller coasters all day!”

What are three ways that being a transplant recipient has changed your life besides giving you another chance?
It has given me friends that I would have never met, and now I couldn’t imagine life without them. It has helped me see life on a broader scale — that the little troubles are just bumps in the road on this journey we call life.

It has taught me that we have to live each day with a purpose and to cherish what we have. Our family, friends and our experiences with those around us are more important than any of the tangible things we think we need.

Did you have any concerns or hesitancy about being a transplant recipient? If so, what were they?
Honestly, not really. I’d been through so much over the previous 18 years that to me, it was just the next thing I needed to do to keep moving forward on my journey.

How does your Native American heritage influence your conversations about organ donation?
I’m not sure I can say it is necessarily due to my heritage, but I just always want to be an advocate. I want people to know that donation works, so I talk about it as much as I can! I am proud to be Native American, and I am proud to be a recipient. My tribal ancestors were very strong-willed people, so I feel my Native American heritage has prepared me to be successful on my transplant journey.

In what ways do you advocate for organ donation?
Any way I can! I donate time when I can. I talk about it any chance I can, and I try every day to show that through transplant, you can live a full life. You can work, travel, exercise, go on hikes…you name it. I want people to see that if there is a will, you can make your ideals for your life happen. It’s all in the attitude!

Tell us about the Transplant Games. What have you experienced?

AMAZING! That one word sums up the games. Do they always run smoothly? No. But do I ever regret going? NEVER. The games and the people I know from them are what I look forward to all year long. You will always find inspiration at the games! From meeting donor families to meeting other recipients, the competition and the sportsmanship is literally the best thing!

Sheble has participated in the Transplant Games of America and World Transplant Games since 2012 in events that include shot put; discus and the ball throw; javelin; Pétanque doubles; volleyball and pickleball doubles. She’s been to Transplant Games of America in Grand Rapids, Michigan; Houston; Cleveland; Salt Lake City and San Diego, and to World Transplant Games in South Africa, Argentina, Spain, United Kingdom and Australia.

Gary Dixon with Chris Hutson Jr.'s family

Making Sure “Little Chris” Is Never Forgotten

February 26, 2021/in Blog, Guest Author/by Gary Dixon

Heart recipient and MTN Ambassador Gary Dixon (center) with donor Chris Hutson Jr.’s family

My name is Gary Dixon. I am here today because of the generosity and gift of a stranger who I now know as Chris Hutson Jr.

In 1999, I was diagnosed with cardiomyopathy, which is a technical term for an enlarged heart muscle. With meds and doctor visits, life continued until 2009, when I had a defibrillator installed to restart my heart if needed, and life went on.

In January 2017 my condition worsened to the point that a heart transplant was my only option. I never realized how sick I was, but luckily Dr. Kao, my cardiologist, did. On Feb. 1, 2017, I was put on the heart transplant list, and my wait began.

On April 21, 2017, I went for what started as a routine office visit that included an exciting wheelchair ride to the emergency room. I was admitted to Saint Luke’s Mid America Heart Institute and told I would be there until I received a heart transplant or became an organ donor.

My stay, which was about 5 1/2 weeks, had many new experiences — some better than others — and early on, the mantra of “one day closer” started to change my attitude and approach to life, and I still use it today. It also has a special meaning to Tesha, the mother of my donor, “Little Chris.”

On May 28, 2017, I got my gift. I was quickly better, not only physically, but also mentally and emotionally. My family will tell you I was a different person. Little Chris was truly changing and improving my life.

I started writing my donor family right after I left the hospital. I had to thank them for my gift and let them know how it had changed my life, but it was bittersweet because I was celebrating, and they were grieving.

In June 2018, I met my donor family, and since then, I have been blessed to get to know what a caring young man my donor — my constant companion, my buddy, Little Chris — is and the loving, sharing family he comes from. We have continued to get to know each other and share stories and memories, and our families are coming together and supporting each other as our journey through life continues.

I will continue to honor my gift and tell anyone who will listen what a great young man Little Chris is and make sure he is never forgotten.

I would like to share one last thought. Every decision you make is like throwing a stone into the water; it has a ripple effect. On Feb. 1, 2017, Chris Hutson Jr. (“Little Chris”) made a decision and signed his driver’s license to become an organ donor. I am part of Chris Hutson Jr.’s ripple effect.

I appreciate you allowing me to share my story and tell you how organ donation has changed my life.

Our thanks to Gary Dixon for writing this guest blog post.

“Honoring My Donor the Best I Can”

February 11, 2021/in Blog, Guest Author/by Barb Sheble

Heart recipient and MTN Ambassador Barb Sheble

After passing out at track practice in January of my freshman year of college, I was sent to two different cardiologists for tests, and since neither could see anything wrong with me, I was cleared to return to practice and was able to finish out the year. About two weeks after the end of the outdoor track season, in mid-May of 1991, I started feeling like I did in January, so my parents took me to the emergency department at a local hospital. While answering the general check-in questions, I passed out, and once back in an exam room, I was found to have a serious heart arrhythmia called ventricular tachycardia (VT). My heart was going way too fast and was in the wrong rhythm.

This hospital did not specialize in these types of cases so, once stabilized, I was transferred to another, more specialized hospital in town, where I was diagnosed with a rare congenital heart condition called arrhythmogenic right ventricular dysplasia (ARVD). This condition not only causes VT, but it also causes fatty, fibrous tissue to build up on the right ventricle.

Over the next 18 years, with the help of an amazing cardiologist, I was able to live a really good life overall, despite having to manage my condition. I was able to finish college with two bachelor’s degrees, be successful working full time as a Medical Lab Scientist, travel and enjoy life with my family and friends! Sure, there were procedures that I had to go through from time to time, like getting an implantable defibrillator in 1995 and a few replacements over the years. And there were times spent in the hospital, but I always tried to just do my best to make each day fun regardless of where I was and what I was doing!

On July 2, 2008, things started to take a turn for the worse. I can still remember like it was yesterday exactly where I was when it seems like a switch was flipped. Beginning on that summer day, I was either in the doctor’s office or in the hospital at least once a week, every week until a night in mid-November when everything came to a head. That night I began having VT that my defibrillator could not pace me out of, so it had to shock me instead. In total, I was shocked seven times before we could get to the hospital and get an IV medicine that would control my heart. The next day I had the last of my many ablation procedures that are used to help eliminate the areas that cause the heart to go into the wrong rhythm. That was also the day that we decided it was finally time to be evaluated for a heart transplant. Honestly, it was not a surprise when my doctor brought it up; I had known for years that transplant was going to be my last-ditch treatment option, and after how things had gone since July, I kind of figured we were working our way there.

In early December 2008, I was evaluated for transplant, and it was determined that I was indeed to that point. On Jan. 6, 2009, I was placed on the transplant list. Over the next seven months and 12 days, I continued to work and do my best to enjoy life. At first, I was still full time but over time had to reduce my hours, and by summer I was down to four hours day. By July 2009, I ended up needing to go on IV medication 24 hours a day, but I was lucky enough to be able to do this at home and still go to work. That was a true blessing, as many people need to wait in the hospital for a while before their transplant!

On Aug. 18, 2009, early in the morning, THE CALL finally came. They had a heart for me! This was an especially amazing day to get the greatest gift that anyone can give, because that day is also my mom’s birthday! It is so special to be able to share that day with her each year, and I cannot thank my donor and their family enough.

Recovery had its little hiccups and took a little longer than some. We also learned that my heart was actually much worse than any of us knew. It was the size of an NFL football and was black/dead on the inside.

Since being given this gift, I have tried to live life to its fullest, and I still always try to have fun and find the positive in each day. I continue to work full time in the lab, travel any chance I get, and spend time as much as I can with my family and friends. I get to be a part of big family moments like weddings, graduations and births. I have been able to get back into my throwing events in track and pick up a few other sports, while competing in the both the World Transplant Games and the Transplant Games of America.

I strive to honor my donor the best I can, and there is not a day that goes by that I don’t think of them and their family. While I have not been able to meet my donor’s family, and I know nothing about my hero, I know I would not be here today without their generosity! A fellow heart recipient once told me he feels as though every donor family is his donor family, and I couldn’t agree more! I have been fortunate enough to meet many other donor families who amaze me, and I am blessed to call some of them my adopted donor families!

Over the years, things have not always been easy, but that does not mean that my life has not been a blessing! As I look back, I sometimes think, “Yeah, that wasn’t the best day” or, “Well, yeah, I could have done without going through that,” but that doesn’t mean that I would want to change things. This journey has made me who I am. It has brought so many wonderful people into my life whom I honestly can’t imagine my life without! It has taught me that I am strong and that with the right people and support system, I can get through anything!

When I first got sick, I didn’t think I would make it to 40, and here I am rocketing toward 50 in fewer than two years! In May, I will celebrate the fact that it has been 30 years since I nearly died. In August, thanks to God, my donor, their family and my amazing medical team, we will celebrate my 12th heart birthday. I think it is safe to say, life doesn’t get any better than that!

Our thanks to Barb Sheble for writing this guest blog post.